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Friday Nugget Blogging

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“I know what DNA is… it’s like personality and what you look like and what language you speak?”

And until this week, how guilty you were. (Now more like how innocent.)

Or how awesome your dog is.

But your DNA is not, according to the FDA, something that you have a right to buy access to… unless your doctor says so. The “Genetic Information” lobby believes otherwise.

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  • Hanspeter

    But what your DNA is not, according to the FDA, is something that you have a right to buy access to… unless your doctor says so

    Is that a convoluted sentence, or what? The FDA has never claimed that you have no right to access your DNA profile. From the first article:

    if they make health claims

    Other gene tests “may not require a doctor at all,” he said.

    Seems pretty clear to me how the FDA is trying to set up the regulations, and the “health claims” distinction is similar to existing regulations for pseudomedicine and its ilk. This article provides way better information and discussion.

  • Is that a convoluted sentence, or what?

    Whoa. Yes it was. Fixed, thanks.

  • calling all toasters

    The FDA is weird. High blood pressure is a risk factor for many things– will I not be allowed to take my own blood pressure from now on? But, then, perhaps they are giving in to a lobby with actual power here, and it’s not the genetic information lobby.

  • DocAmazing

    Okay, I have no idea what the FDA has planned for DNA sequencing or testing or any of the rest of it, but I can give you a little perspective on patient-driven medical testing. Peruse a medical textbook and pick a dreadful disease: you will, at any given moment, have at least one of the symptoms of that disease. Medical students go through that phase, then realize that most people are not sick. however, many patients peruse the Internet, convinced that their headache or rash is a harbinger of something dire, and get (I wish I were joking) full-body CT scans, “just in case”.

    Medical testing exists to confirm what has been suspected based on a thorough history and physical examination, not to go fishing for weirdness. When intertoobs-educated patients start wanting tests–DNA or otherwise–we docs cringe, waiting for the inevitable three-month, thirty-thousand dollar workup that shows nothing but causes immense anxiety on all parts as normal variations are carefully addressed to make sure that no pathology is missed.

    End rant.

  • OmerosPeanut

    “I know what DNA is… it’s like personality and what you look like and what language you speak?”

    Can you give a source for this? It’s a great line, but it looks too good to be true if left without reference.

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